Cooley’s Anemia

Edited by Edited by Elliott Vichinsky (Children's Hospital and Research Center, Oakland, California) and Ellis Neufeld (Harvard Medical School, Children's Hospital, Boston, Massachusetts)
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Cooley’s Anemia

Published: August 2010

Volume 1202

Proceedings of the “Ninth Cooley's Anemia Symposium,” held at the New York Academy of Sciences.
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Thanks to scientific advances, individuals with thalassemia—a group of genetic blood disorders which includes Cooley's Anemia—are now living into their forties and fifties. Not only are individuals living longer, but their quality of life has increased. Scientific and clinical advancements have resulted in new iron-chelating drugs, early detection of organ failure, an understanding of adult complications associated with living with thalassemia (osteoporosis, heart failure, growth hormone deficiency, pulmonary hypertension, and infertility), and promising progress towards the ultimate magic bullet—a cure in the form of bone marrow and cord blood transplants, or gene therapy. The papers from this symposium integrate basic science and clinical research so that both scientists and clinicians can develop a mutual understanding of recent progress in thalassemia.