This site uses cookies.
Learn more.

×

This website uses cookies. Some of the cookies we use are essential for parts of the website to operate while others offer you a better browsing experience. You give us your permission to use cookies, by continuing to use our website after you have received the cookie notification. To find out more about cookies on this website and how to change your cookie settings, see our Privacy policy and Terms of Use.

Healthcare in the Era of Big Data: Opportunities and Challenges

Available via

LIVESTREAM

FREE

for Members

Healthcare in the Era of Big Data: Opportunities and Challenges

Wednesday, October 24 - Thursday, October 25, 2018

The New York Academy of Sciences, 7 World Trade Center, 250 Greenwich St Fl 40, New York

Presented By

NYU School of Medicine

The New York Academy of Sciences

 

Data analysis for medical research is no longer restricted to the doctor’s office or the traditional clinical trial. Health outcomes may be predicted by information from wearable devices, at-home genetic testing kits, insurance databases, web searches, or even a cell phone’s GPS. As a result, business models in healthcare are experiencing a fundamental period of disruption, and new players are entering the space from tech, e-commerce, and beyond. But with this integration of big data comes a fresh set of ethical concerns, as those lengthy user agreements that are easily scrolled past might enroll individuals into a study — unbeknownst to them. Join The New York Academy of Sciences and NYU School of Medicine for a free 2-day symposium exploring the ethical risks and rewards of incorporating big data into the healthcare landscape, and discuss how to navigate recruitment and consent; privacy protection and data ownership; corporate responsibility and compliance; and more in this new era of medicine and research.

Livestream

All panel sessions and keynote lectures will be livestreamed during the two days of the colloquium. Registration is not required to view the livestream; watch it here.

Registration

Keynote Speakers

Amy Abernethy
Amy Abernethy, MD, PhD, Flatiron Health
Harlan Krumholz
Harlan Krumholz, MD, SM, Yale School of Medicine

Speakers, Moderators & Panelists

Misti Ault Anderson, MS, MA, U.S. Department of Health and Human Services
Misti Ault Anderson, MS, MA, U.S. Department of Health and Human Services
Mark Barnes, JD, LLM, Ropes and Gray LLP
Mark Barnes, JD, LLM, Ropes and Gray LLP
Kate Black, JD, 23andMe
Kate Black, JD, 23andMe
Robert M. Califf, MD, Duke University; Verily
Robert M. Califf, MD, Duke University; Verily
Arthur Caplan, PhD, NYU School of Medicine
Arthur Caplan, PhD, NYU School of Medicine
Jaqueline Corrigan-Curay
Jacqueline Corrigan-Curay, JD, MD, U.S. Food and Drug Administration
Brett Davis
Brett Davis, Deloitte
Tom Donaldson
Thomas Donaldson, PhD, The Wharton School, The University of Pennsylvania
Barbara Evans, PhD, JD, LLM, The University of Houston Law Center
Barbara Evans, PhD, JD, LLM, The University of Houston Law Center
Erika Fry
Erika Fry, MA, Fortune
Patricia Furlong
Patricia Furlong, Parent Project Muscular Dystrophy
Adrian Hernanadez
Adrian F. Hernandez, MD, MHS, Duke University School of Medicine
Jamie Holloway
Jamie Holloway, PhD, Georgetown University
Solomon Iyasu
Solomon Iyasu, MD, MPH, Merck and Co.
Rainu Kaushal
Rainu Kaushal, MD, MPH, Weill Cornell Medicine; New York Presbyterian Hospital
Deborah Kilpatrick
Deborah Kilpatrick, PhD, Evidation
Craig Konnoth, JD, MPhil, University of Colorado, Boulder
Craig Konnoth, JD, MPhil, University of Colorado, Boulder
Vivian Lee
Vivian Lee, MD, PhD, MBA, Verily
Craig Lipset
Craig Lipset, MBA, Pfizer
James Lu, MD, PhD, Helix
James Lu, MD, PhD, Helix
Mitchell Lunn
Mitchell Lunn, MD, MAS, University of California, San Francisco
Jennifer Miller
Jennifer E. Miller, PhD, Yale School of Medicine; Bioethics International
Tara Montgomery
Tara Montgomery, Civic Health Partners
Richard Moscicki, MD, PhRMA
Richard Moscicki, MD, PhRMA
Sally Okun, RN, MMHS, PatientsLikeMe
Sally Okun, RN, MMHS, PatientsLikeMe
Bray Patrick-Lake
Bray Patrick-Lake, MFS, Duke Clinical Research Institute
Eric Perakslis
Eric D. Perakslis, PhD, Harvard Medical School
Arti Rai
Arti K. Rai, JD, Duke University School of Law
Patrick Ryan, PhD, Janssen; Columbia University
Patrick Ryan, PhD, Janssen; Columbia University
Mark Sheehan
Mark Sheehan, PhD, The Ethox Centre, University of Oxford
Bernd Stahl
Bernd Stahl, DSc, PhD, LLM, De Montfort University
Joanne Waldstreicher
Joanne Waldstreicher, MD, Johnson & Johnson
Consuelo Wilkins
Consuelo H. Wilkins, MD, MSCI, Vanderbilt University Medical Center
Nadav Zafir
Nadav Zafrir, LLB, MBA, Team8

Organizers

Melanie Brickman Borchard, PhD, MSc, The New York Academy of Sciences
Melanie Brickman Borchard, PhD, MSc, The New York Academy of Sciences
Robert Califf
Robert M. Califf, MD, Duke University; Verily
Arthur Caplan
Arthur Caplan, PhD, NYU School of Medicine
Brett Davis
Brett Davis, Deloitte
Kyle Ferguson, MPhil, NYU School of Medicine
Kyle Ferguson, MPhil, NYU School of Medicine
Kari Fischer, PhD, The New York Academy of Sciences
Kari Fischer, PhD, The New York Academy of Sciences
Rachel Fleurence
Rachael Fleurence, PhD, National Evaluation System for Health Technology Coordinating Center, Medical Device Innovation Consortium
Richard Moscicki
Richard Moscicki, MD, PhRMA
Sally Okun
Sally Okun, RN, MMHS, PatientsLikeMe

This symposium was made possible with support from


Promotional Partner

The New York Area Group for Informatics and Modeling (NYAGIM)

Wednesday

October 24, 2018

8:00 AM

Registration and Breakfast

8:40 AM

Welcoming Remarks

Speakers

Ellis Rubinstein
The New York Academy of Sciences
Joanne Waldstreicher, MD
Johnson & Johnson
Arthur Caplan, PhD
NYU School of Medicine
9:00 AM

Setting the Stage

Speaker

Arthur Caplan, PhD
NYU School of Medicine

Session I: Incorporating Big Data into the Healthcare Landscape: Applications and Open Questions

9:30 AM

Panel Discussion

Speakers

Moderator: Mark Sheehan, PhD
The Ethox Centre, University of Oxford
Jacqueline Corrigan-Curay, JD, MD
U.S. Food and Drug Administration
Brett Davis
Deloitte
Vivian Lee, MD, PhD, MBA
Verily
Patrick Ryan, PhD
Janssen; Columbia University
10:45 AM

Networking Coffee Break

Session II: Ethical Risks and Rewards for Big Data in Healthcare

11:15 AM

Panel Discussion

Speakers

Rainu Kaushal, MD, MPH
Weill Cornell Medicine; New York Presbyterian Hospital
Barbara Evans, PhD, JD, LLM
The University of Houston Law Center
Jamie Holloway, PhD
Georgetown University
Solomon Iyasu, MD, MPH
Merck
Sally Okun, RN, MMHS
PatientsLikeMe
12:30 PM

Networking Luncheon

1:45 PM

Keynote Lecture: AI in Medicine — Navigating the Risks, Seizing the Opportunities

Speaker

Harlan Krumholz, MD, SM
Yale School of Medicine

Session III: Privacy Protection and Data Ownership

2:25 PM

Panel Discussion

Speakers

Moderator: Bernd Stahl, DSc, PhD, LLM
De Montfort University
Mark Barnes, JD, LLM
Ropes & Gray
Eric Perakslis, PhD
Harvard Medical School
Arti K. Rai, JD
Duke University School of Law
Nadav Zafrir, LLB, MBA
Team8
3:40 PM

Networking Coffee Break

Session IV: Recruitment and Consent

4:10 PM

Panel Discussion

Speakers

Moderator: Adrian F. Hernandez, MD, MHS
Duke University School of Medicine
Misti Ault Anderson, MS
U.S. Department of Health and Human Services
Deborah Kilpatrick, PhD
Evidation
Craig Lipset, MBA
Pfizer
Mitchell Lunn, MD, MAS
University of California, San Francisco
Consuelo H. Wilkins, MD, MSCI
Vanderbilt University Medical Center
5:25 PM

Closing Remarks

5:30 PM

Networking Reception

7:00 PM

Day 1 Colloquium Adjourns

Thursday

October 25, 2018

8:00 AM

Registration and Breakfast

8:50 AM

Keynote Lecture: Research at Scale: Rethinking Evidence Generation for the 21st Century

Speaker

Amy Abernethy, MD, PhD
Flatiron Health

Session V: Third-party Data Access and Genomic Databases

9:30 AM

Panel Discussion

Speakers

Moderator: Erika Fry
Fortune
Kate Black, JD
23andMe
Patricia Furlong
Parent Project Muscular Dystrophy
Craig Konnoth, JD, MPhil
University of Colorado, Boulder
James Lu, MD, PhD
Helix
Jennifer E. Miller, PhD
Yale School of Medicine; Bioethics International
10:45 AM

Networking Coffee Break

Session VI: Corporate Responsibility: Working for Social Good

11:15 AM

Panel Discussion

Speakers

Moderator: Richard Moscicki, MD
PhRMA
Joanne Waldstreicher, MD
Johnson & Johnson
Thomas Donaldson, PhD
The Wharton School, The University of Pennsylvania
Tara Montgomery
Civic Health Partners
Bray Patrick-Lake, MFS
Duke Clinical Research Institute
12:30 PM

Networking Luncheon

Session VII: Big Data, Big Future? A Debate

1:45 PM

Speakers

Robert M. Califf, MD
Duke University; Verily
Arthur Caplan, PhD
NYU School of Medicine
3:00 PM

Closing Remarks

To view full attendee list, you must first register for the event, then log in to the Academy website. This list is provided for the personal, noncommercial and informational use only of event attendees, in a manner that is consistent with the New York Academy of Sciences’ mission, goals and activities.
  • 23andMe

  • 2M Research

  • Adelphi University

  • Breast Cancer Action

  • Canadian Organization for Rare Disorders

  • Century Innovations

  • Chem & Bio Informatics

  • Children's Minnesota

  • CitizenRacecar, LLC

  • Civic Health Partners

  • Columbia University

  • Columbia University Graduate School of Arts and Sciences

  • Columbia University Irving Medical Center

  • Cubisme

  • CUNY City Tech

  • De Montfort University

  • Deloitte

  • Department of Veteran's Affairs

  • Duke Clinical Research Institute

  • Duke Margolis Center for Health Policy

  • Duke University

  • Duke University School of Law

  • Duke University School of Medicine

  • Evidation Health

  • FDA

  • Flatiron Health

  • Fortune

  • Gemini Group

  • GenomeWeb

  • Georgetown University

  • Global Gateway Advisors

  • Harvard Medical School

  • Helix

  • HHS Office for Human Research Protections (OHRP)

  • Hunter College, CUNY

  • IBM Research

  • Image Reading Center, Inc.

  • Imclone Systems, Inc.

  • Informa PLC

  • Janssen Research & Development, LLC

  • Janssen; Columbia University

  • Johnson & Johnson

  • Marketwatch

  • Memorial Sloan-Kettering Cancer Center

  • More Than Our Voices (ALS)

  • National Breast Cancer Coalition

  • National Evaluation System for Health Technology (NEST) Coordinating Center

  • National Health Council

  • New Jersey City University

  • New York City Department of Health and Mental Hygiene

  • New York Presbyterian Hospital/Columbia University Medical C

  • New York University

  • New York University College of Dentistry

  • New York University Medical Center

  • NYU Center for Data Science

  • NYU Courant Institute of Mathematical Science

  • NYU Gallatin School of Individualized Study

  • NYU Langone Health

  • NYU School of Medicine

  • NYU Tandon School of Engineering

  • Parent Project Muscular Dystrophy

  • PatientsLikeMe

  • Pfizer

  • Pfizer Inc

  • Pfizer Inc.

  • PhRMA

  • Princeton University

  • Reagan-Udall Foundation for the Food and Drug Administration

  • Ropes and Gray LLP

  • Scheer & Co.

  • Sentrian

  • Serendipity Foundation

  • Society of Physician Entrepreneurs

  • St. Johns University, NY

  • Stavanger University Hospital, Norway

  • Stevens Institute of Technology

  • Team8

  • The Albert Einstein College of Medicine

  • The Damon Runyon Cancer Research Foundation

  • The Ethox Centre, University of Oxford

  • The Hastings Center

  • The Henry Luce Foundation

  • The Icahn School of Medicine at Mount Sinai

  • The Isaac Foundation

  • The New York Academy of Sciences

  • The University of Houston Law Center

  • The Wharton School, The University of Pennsylvania

  • TIME

  • UCSF

  • Uniformed Services University of the Health Sciences

  • University in Stavanger

  • University of Colorado, Boulder

  • University of Karachi

  • University of Michigan

  • University of Tennessee Health Sciences

  • Vanderbilt University Medical Center

  • Verily Life Sciences

  • Weill Cornell Graduate School of Medical Sciences

  • Weill Cornell Medicine

  • Weill Cornell Medicine / New York Presbyterian Hospital

  • Yale School of Medicine

  • Yale School of Medicine; Bioethics International