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Healthcare in the Era of Big Data: Opportunities and Challenges

FREE

for Members

Healthcare in the Era of Big Data: Opportunities and Challenges

Wednesday, October 24 - Thursday, October 25, 2018

The New York Academy of Sciences, 7 World Trade Center, 250 Greenwich St Fl 40, New York

Presented By

NYU School of Medicine

The New York Academy of Sciences

 

Data analysis for medical research is no longer restricted to the doctor’s office or the traditional clinical trial. Health outcomes may be predicted by information from wearable devices, at-home genetic testing kits, insurance databases, web searches, or even a cell phone’s GPS. As a result, business models in healthcare are experiencing a fundamental period of disruption, and new players are entering the space from tech, e-commerce, and beyond. But with this integration of big data comes a fresh set of ethical concerns, as those lengthy user agreements that are easily scrolled past might enroll individuals into a study — unbeknownst to them. Join The New York Academy of Sciences and NYU School of Medicine for a free 2-day symposium exploring the ethical risks and rewards of incorporating big data into the healthcare landscape, and discuss how to navigate recruitment and consent; privacy protection and data ownership; corporate responsibility and compliance; and more in this new era of medicine and research.

Registration

Keynote Speakers

Amy Abernethy, MD, PhD,
Flatiron Health
Harlan Krumholz, MD, SM,
Yale University

Speakers, Moderators & Panelists

Misti Anderson
Misti Ault Anderson, MS, MA,
U.S. Department of Health and Human Services
Mark Barnes
Mark Barnes, JD, LLM,
Ropes and Gray LLP
Healthcare in the Era of Big Data: Opportunities and Challenges
Kate Black, JD,
23andMe
Robert Califf
Robert M. Califf, MD,
Duke University; Verily
Arthur Caplan
Arthur Caplan, PhD,
NYU School of Medicine
Jaqueline Corrigan-Curay
Jacqueline Corrigan-Curay, JD, MD,
U.S. Food and Drug Administration
Healthcare in the Era of Big Data: Opportunities and Challenges
Brett Davis,
Deloitte
Barbara Evans
Barbara Evans, PhD, JD, LLM,
The University of Houston Law Center
Erika Fry
Erika Fry, MA,
Fortune
Patricia Furlong
Patricia Furlong,
Parent Project Muscular Dystrophy
Adrian Hernanadez
Adrian F. Hernandez, MD, MHS,
Duke University School of Medicine
Jamie Holloway
Jamie Holloway, PhD,
Independent Research Advocate
Solomon Iyasu
Solomon Iyasu, MD, MPH,
Merck and Co.
Healthcare in the Era of Big Data: Opportunities and Challenges
Regina James, MD,
2M Research
Rainu Kaushal
Rainu Kaushal, MD, MPH,
Weill Cornell Medicine; New York Presbyterian Hospital
Deborah Kilpatrick
Deborah Kilpatrick, PhD,
Evidation
Vivian Lee
Vivian Lee, MD, PhD, MBA,
Verily
Craig Lipset
Craig Lipset, MBA,
Pfizer
James Lu
James Lu, MD, PhD,
Helix
Mitchell Lunn
Mitchell Lunn, MD, MAS,
University of California, San Francisco
Healthcare in the Era of Big Data: Opportunities and Challenges
Jennifer E. Miller, PhD,
Yale University
Tara Montgomery
Tara Montgomery,
Civic Health Partners
Richard Moscicki
Richard Moscicki, MD,
PhRMA
Bray Patrick-Lake
Bray Patrick-Lake, MFS,
Duke Clinical Research Institute
Deborah Peel
Deborah Peel, MD,
Patient Privacy Rights
Healthcare in the Era of Big Data: Opportunities and Challenges
Eric D. Perakslis, PhD,
Datavant; Harvard Medical School
Arti Rai
Arti K. Rai, JD,
Duke University School of Law
Healthcare in the Era of Big Data: Opportunities and Challenges
Patrick Ryan, PhD,
Janssen; Columbia University
Mark Sheehan
Mark Sheehan, PhD,
The Ethox Centre, University of Oxford
Bernd Stahl
Bernd Stahl, DSc, PhD, LLM,
De Montfort University
Joanne Waldstreicher
Joanne Waldstreicher, MD,
Johnson & Johnson
Consuelo Wilkins
Consuelo H. Wilkins, MD, MSCI,
Vanderbilt University Medical Center
Healthcare in the Era of Big Data: Opportunities and Challenges
Nadav Zafrir, LLB, MBA,
Team8

Organizers

Healthcare in the Era of Big Data: Opportunities and Challenges
Melanie Brickman Borchard, PhD, MSc,
The New York Academy of Sciences
Robert Califf
Robert M. Califf, MD,
Duke University; Verily
Arthur Caplan
Arthur Caplan, PhD,
NYU School of Medicine
Healthcare in the Era of Big Data: Opportunities and Challenges
Brett Davis,
Deloitte
Kyle Ferguson
Kyle Ferguson, MPhil,
NYU School of Medicine
Healthcare in the Era of Big Data: Opportunities and Challenges
Kari Fischer, PhD,
The New York Academy of Sciences
Rachel Fleurence
Rachael Fleurence, PhD,
National Evaluation System for Health Technology Coordinating Center, Medical Device Innovation Consortium
Richard Moscicki
Richard Moscicki, MD,
PhRMA
Sally Okun
Sally Okun, RN, MMHS,
PatientsLikeMe

This symposium was made possible with support from


Wednesday

October 24, 2018

8:00 AM

Registration and Breakfast

8:40 AM

Welcoming Remarks

Speakers

Arthur Caplan, PhD
NYU School of Medicine
Joanne Waldstreicher, MD
Johnson & Johnson
Melanie Brickman Borchard, PhD, MSc
The New York Academy of Sciences
9:00 AM

Setting the Stage

Speaker

Jennifer E. Miller, PhD
Yale University

Session I: Incorporating Big Data into the Healthcare Landscape: Applications and Open Questions

9:30 AM

Panel Discussion

Speakers

Moderator: Mark Sheehan, PhD
The Ethox Centre, University of Oxford
Jacqueline Corrigan-Curay, JD, MD
U.S. Food and Drug Administration
Brett Davis
Deloitte
Vivian Lee, MD, PhD, MBA
Verily
Bray Patrick-Lake, MFS
Duke Clinical Research Institute
Patrick Ryan, PhD
Janssen; Columbia University
10:45 AM

Networking Coffee Break

Session II: Ethical Risks and Rewards for Big Data in Healthcare

11:15 AM

Panel Discussion

Speakers

Rainu Kaushal, MD, MPH
Weill Cornell Medicine; New York Presbyterian Hospital
Barbara Evans, PhD, JD, LLM
The University of Houston Law Center
Jamie Holloway, PhD
Independent Research Advocate
Solomon Iyasu, MD, MPH
Merck
Regina James, MD
2M Research
12:30 PM

Networking Luncheon

1:45 PM

Keynote Lecture: Title to Be Announced

Speaker

Harlan Krumholz, MD, SM
Yale University

Session III: Privacy Protection and Data Ownership

2:25 PM

Panel Discussion

Speakers

Moderator: Bernd Stahl, DSc, PhD, LLM
De Montfort University
Mark Barnes, JD, LLM
Ropes & Gray
Deborah Peel, MD
Patient Privacy Rights
Eric Perakslis, PhD
Datavant; Harvard Medical School
Arti K. Rai, JD
Duke University School of Law
Nadav Zafrir, LLB, MBA
Team8
3:40 PM

Networking Coffee Break

Session IV: Recruitment and Consent

4:10 PM

Panel Discussion

Speakers

Moderator: Adrian F. Hernandez, MD, MHS
Duke University School of Medicine
Misti Ault Anderson, MS
U.S. Department of Health and Human Services
Deborah Kilpatrick, PhD
Evidation
Craig Lipset, MBA
Pfizer
Mitchell Lunn, MD, MAS
University of California, San Francisco
Consuelo H. Wilkins, MD, MSCI
Vanderbilt University Medical Center
5:25 PM

Closing Remarks

5:30 PM

Networking Reception

6:30 PM

Day 1 Colloquium Adjourns

Thursday

October 25, 2018

8:00 AM

Registration and Breakfast

8:50 AM

Keynote Lecture: Research at Scale: Rethinking Evidence Generation for the 21st Century

Speaker

Amy Abernathy, MD, PhD
Flatiron Health

Session V: Third-party Data Access and Genomic Databases

9:30 AM

Panel Discussion

Speakers

Moderator: Erika Fry
Fortune
Kate Black, JD
23andMe
Patricia Furlong
Parent Project Muscular Dystrophy
James Lu, MD, PhD
Helix
Additional panelists to be announced
10:45 AM

Networking Coffee Break

Session VI: Corporate Responsibility

11:15 AM

Panel Discussion

Speakers

Joanne Waldstreicher, MD
Johnson & Johnson
Richard Moscicki, MD
PhRMA
Tara Montgomery
Civic Health Partners
Additional panelists to be announced
12:30 PM

Networking Luncheon

Session VII: Ethics Wrap-up

1:45 PM

Presentations and Discussion

Speakers

Robert M. Califf, MD
Duke University; Verily
Art Caplan, PhD
NYU School of Medicine
3:00 PM

Closing Remarks